20 Years Living with ALS: A Special Q&A with My Sons Co-Hosting

I'm Dying to Tell You

When I was initially diagnosed with ALS, I was given the typical prognosis of 2-5 years to live. That was 20 years ago. Today, alongside my two sons, Paul and Christian, we reflect on this journey, answer listener questions, and explore the lessons learned along the way. I answer your questions about life with ALS, my thoughts on the future and advice to others finding themselves in the face of adversity. Then, I find out what questions my sons have for me after 20 years with ALS. Although their questions were tough to answer, I think it was good for all of us to discuss. I’m incredibly grateful for these bonus years since only 5% of ALS patients live longer than 20 years. Join us for an intimate and candid conversation as we commemorate this significant milestone and look towards the future with hope & gratitude. Help celebrate with me by sharing this episode with a friend and leaving a review wherever you listen. Thank you for your incredible support. Hugs, Lorri

I am so incredibly grateful that you are here. It means the world to me! Thank you. Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.