Ellen Boyer and World Down Syndrome Day 2024 & Volume Two: Endurance!

Heart to Heart with Anna

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When Ellen Boyer graced our show with her story of love and resilience, it was clear that her daughter Brett, who blessed the world with her presence despite Down syndrome and a congenital heart defect, has sparked a legacy that transcends every stereotype. Through the Brett Boyer Foundation, Ellen's dedication to challenging limitations and advocating for CHD research is a beacon of hope that lights up our latest episode. As we celebrate World Down Syndrome Day, we invite you into our heartwarming discussion and extend an open hand for you to join us in spreading the message for World Down Syndrome Day: Stop the Stereotypes.
In the 2nd and 3rd segments of the episode, you'll hear co-editors Megan Tones and Anna Jaworski reading from The Heart of a Heart Warrior Volume 2: Endurance. This week they're reading essays from Chapter 5 in anticipation of the next Baby Hearts Press Book Study, which starts on World Down Syndrome Day (March 21st) from 5-6 PM USA CDT.
It's the personal journeys that often strike the deepest chord, and this chapter resonates with stories of tenacity and the transformative power of companionship. Listen to the heartening tale of Monica Mossey and her service dog Jax, whose bond exemplifies the extraordinary support that can come from our four-legged friends. The courage of Tracey Grasty, through multiple heart surgeries and life's relentless challenges, will remind you of the strength that lies within our community, and the remarkable resilience we can muster when faced with life's daunting obstacles.
We round out the conversation by stepping into the shoes of those whose professional lives are shaped by their personal experiences with congenital heart disease. From Victoria Scoggins' journey into healthcare administration to Megan Tones' research in rare diseases, these narratives showcase the depth of impact that personal health can have on career choices and the contributions these individuals make to the healthcare field. We end the chapter with an essay by heart warrior and nurse, Roslyn Rivera--a nurse whose practice spanned the globe. As your host, Anna Jaworski, I'm here to reaffirm that the power of advocacy and community is just a heartbeat away, and together, we can navigate the landscapes of the heart with courage, dedication, and hope.
Websites mentioned in this episode:
Baby Hearts Press: https://www.babyheartspress.com
The Brett Boyer Foundation: https://www.thebrettboyerfoundation.org/

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Hoofdstukken

1. "The Heart of a Heart Warrior Volume Two: Endurance" Chapter 5 (00:00:00)

2. Chapter 5: Endurance (00:12:29)

3. Chaper 5 Introduction (00:15:24)

4. Jax: More Than a Service Dog (00:17:51)

5. Giving Back by Tracey Grasty (00:25:39)

6. My Career Choice by Victoria Scoggins (00:37:18)

7. Moonlighting as a CHDer by Megan Tones (00:43:56)

8. Novick Cardiac Alliance Trips to the Middle East and Eastern Europe by Roslyn Rivera (00:54:04)