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S3E3: Find Your Tribe with TAAF
Manage episode 433868404 series 2802480
Feeling isolated after your diagnosis? Finding your tribe is life altering and tremendously helpful in facilitating your treatment and recovery from brain surgery and bleeds. TAAF is The Aneurysm and AVM Foundation, a foundation focused on supporting brain bleed survivors, grieving families, caregivers, and research. In this episode, Eryn interviews Dina Chon, the executive director of TAAF. The two discuss the mission and work of TAAF which supports individuals who have experienced brain bleeds and provide resources and information to the community.
Summary
Dina shares the history of the TAAF Foundation and how it has grown over the years. They also talk about the importance of acknowledging and embracing all emotions, not just happiness, in the healing process. In this conversation, Dina Chon discusses her personal experience with her mother's brain aneurysm and how it led her to leading The Aneurysm and AVM Foundation. She shares the importance of support groups and the impact they can have on survivors and their families. Dina also highlights the various programs and resources offered by TAAF, including brain buddies, fundraising events, and research grants. She emphasizes the power of community and the role of TAAF in providing support, education, and advocacy for those affected by brain aneurysms and AVMs.
Keywords
brain bleeds, Aneurysm and AVM Foundation, TAAF, support, resources, emotions, healing, brain aneurysm, AVM, support groups, TAAF, The Aneurysm and AVM Foundation, brain buddies, fundraising events, research grants, community, support, education, advocacy
Takeaways
The Aneurysm and AVM Foundation (TAAF) is an organization that supports individuals who have experienced brain bleeds and provides resources and information to the community.
TAAF was founded by a neurosurgeon and his nurse who wanted to do more for patients beyond medical treatment.
TAAF offers support groups and resources for individuals and families affected by brain bleeds.
It is important to acknowledge and embrace all emotions, not just happiness, in the healing process. Support groups can provide a sense of community and understanding for survivors and their families.
The Aneurysm and AVM Foundation (TAAF) offers various programs and resources, including brain buddies, fundraising events, and research grants.
TAAF focuses on research, programming, and providing support to survivors and their families.
Fundraising is essential for TAAF to continue its work in supporting and advocating for those affected by brain aneurysms and AVMs.
Getting involved with TAAF, whether through fundraising or participating in support groups, allows individuals to give back and help others in the community.
Sound Bites
"If it bleeds, TAAF leads."
"I would literally program myself to work all day and help people 24 hours."
"I am non-robot for sure."
"My mom was lying in the bathroom. She'd gotten up to use the restroom, I'm assuming, and she'd ruptured."
"She opens her eyes and she looks at me and she tells me she loves me. And she passes out and she dies."
"We're going to be like you."
Chapters
00:00
Introduction and Starting the Conversation
03:19
The History and Growth of TAF
08:03
Dina's Journey to TAF
12:16
The Role of TAF in Serving the Community
14:24
Embracing All Emotions in the Healing Process
18:04
Supporting Individuals at Every Stage
22:54
Personal Experience with Brain Aneurysm
28:44
The Importance of Support Groups
32:40
Programs and Resources Offered by TAF
36:53
Fundraising for Research and Support
45:17
Getting Connected with TAF
Reach out to
Eryn on IG @eryn_makingheadwaypodcast
Alison on IG @alison_maknigheadwayodcast
MHP on IG @makingheadwaypodcast
TAAF on IG TAFF_org
Go to our website www.makingheadwaypodcast.com for full show notes and resources
Support us at
Donate section on our website.
71 afleveringen
Manage episode 433868404 series 2802480
Feeling isolated after your diagnosis? Finding your tribe is life altering and tremendously helpful in facilitating your treatment and recovery from brain surgery and bleeds. TAAF is The Aneurysm and AVM Foundation, a foundation focused on supporting brain bleed survivors, grieving families, caregivers, and research. In this episode, Eryn interviews Dina Chon, the executive director of TAAF. The two discuss the mission and work of TAAF which supports individuals who have experienced brain bleeds and provide resources and information to the community.
Summary
Dina shares the history of the TAAF Foundation and how it has grown over the years. They also talk about the importance of acknowledging and embracing all emotions, not just happiness, in the healing process. In this conversation, Dina Chon discusses her personal experience with her mother's brain aneurysm and how it led her to leading The Aneurysm and AVM Foundation. She shares the importance of support groups and the impact they can have on survivors and their families. Dina also highlights the various programs and resources offered by TAAF, including brain buddies, fundraising events, and research grants. She emphasizes the power of community and the role of TAAF in providing support, education, and advocacy for those affected by brain aneurysms and AVMs.
Keywords
brain bleeds, Aneurysm and AVM Foundation, TAAF, support, resources, emotions, healing, brain aneurysm, AVM, support groups, TAAF, The Aneurysm and AVM Foundation, brain buddies, fundraising events, research grants, community, support, education, advocacy
Takeaways
The Aneurysm and AVM Foundation (TAAF) is an organization that supports individuals who have experienced brain bleeds and provides resources and information to the community.
TAAF was founded by a neurosurgeon and his nurse who wanted to do more for patients beyond medical treatment.
TAAF offers support groups and resources for individuals and families affected by brain bleeds.
It is important to acknowledge and embrace all emotions, not just happiness, in the healing process. Support groups can provide a sense of community and understanding for survivors and their families.
The Aneurysm and AVM Foundation (TAAF) offers various programs and resources, including brain buddies, fundraising events, and research grants.
TAAF focuses on research, programming, and providing support to survivors and their families.
Fundraising is essential for TAAF to continue its work in supporting and advocating for those affected by brain aneurysms and AVMs.
Getting involved with TAAF, whether through fundraising or participating in support groups, allows individuals to give back and help others in the community.
Sound Bites
"If it bleeds, TAAF leads."
"I would literally program myself to work all day and help people 24 hours."
"I am non-robot for sure."
"My mom was lying in the bathroom. She'd gotten up to use the restroom, I'm assuming, and she'd ruptured."
"She opens her eyes and she looks at me and she tells me she loves me. And she passes out and she dies."
"We're going to be like you."
Chapters
00:00
Introduction and Starting the Conversation
03:19
The History and Growth of TAF
08:03
Dina's Journey to TAF
12:16
The Role of TAF in Serving the Community
14:24
Embracing All Emotions in the Healing Process
18:04
Supporting Individuals at Every Stage
22:54
Personal Experience with Brain Aneurysm
28:44
The Importance of Support Groups
32:40
Programs and Resources Offered by TAF
36:53
Fundraising for Research and Support
45:17
Getting Connected with TAF
Reach out to
Eryn on IG @eryn_makingheadwaypodcast
Alison on IG @alison_maknigheadwayodcast
MHP on IG @makingheadwaypodcast
TAAF on IG TAFF_org
Go to our website www.makingheadwaypodcast.com for full show notes and resources
Support us at
Donate section on our website.
71 afleveringen
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