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Lia Paulina Cruz Rivera, 7, infantile myofibromatosis, Woonsocket, RI, with Julibeth, her mother

6:13
 
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Inhoud geleverd door Audacy. Alle podcastinhoud, inclusief afleveringen, afbeeldingen en podcastbeschrijvingen, wordt rechtstreeks geüpload en geleverd door Audacy of hun podcastplatformpartner. Als u denkt dat iemand uw auteursrechtelijk beschermde werk zonder uw toestemming gebruikt, kunt u het hier beschreven proces https://nl.player.fm/legal volgen.

In January 2018, at 8 months old while living in Puerto Rico, Lia suddenly lost movement and sensation from her hips down. She began treatment in Puerto Rico, but their experience wasn't the best, and one of the doctors told Lia’s mom that her tumor was very rare. Her mom conducted research and learned that Dana-Farber was one of the best places to be treated.

Lia is in a clinical trial for the second time. Oral medication twice a day, the same medicine/treatment she used from 2018 -2020.

Julibeth has no words that can describe what Lia has been through, but Lia is always excited when she knows she's having an appointment, she feels safe, she feels happy, and for the entire family seeing her like that make them happy. The Jimmy Fund

Clinic is her special place, around people that love, care and always want what is best for her and her family.

Lia loves to draw, paint, dance, play pretend, Bluey, and unicorns. · Lia will be saying “Play Ball” at tonight’s game.

  continue reading

500 afleveringen

Artwork
iconDelen
 

Fetch error

Hmmm there seems to be a problem fetching this series right now. Last successful fetch was on October 24, 2024 10:30 (4d ago)

What now? This series will be checked again in the next hour. If you believe it should be working, please verify the publisher's feed link below is valid and includes actual episode links. You can contact support to request the feed be immediately fetched.

Manage episode 434212527 series 2447275
Inhoud geleverd door Audacy. Alle podcastinhoud, inclusief afleveringen, afbeeldingen en podcastbeschrijvingen, wordt rechtstreeks geüpload en geleverd door Audacy of hun podcastplatformpartner. Als u denkt dat iemand uw auteursrechtelijk beschermde werk zonder uw toestemming gebruikt, kunt u het hier beschreven proces https://nl.player.fm/legal volgen.

In January 2018, at 8 months old while living in Puerto Rico, Lia suddenly lost movement and sensation from her hips down. She began treatment in Puerto Rico, but their experience wasn't the best, and one of the doctors told Lia’s mom that her tumor was very rare. Her mom conducted research and learned that Dana-Farber was one of the best places to be treated.

Lia is in a clinical trial for the second time. Oral medication twice a day, the same medicine/treatment she used from 2018 -2020.

Julibeth has no words that can describe what Lia has been through, but Lia is always excited when she knows she's having an appointment, she feels safe, she feels happy, and for the entire family seeing her like that make them happy. The Jimmy Fund

Clinic is her special place, around people that love, care and always want what is best for her and her family.

Lia loves to draw, paint, dance, play pretend, Bluey, and unicorns. · Lia will be saying “Play Ball” at tonight’s game.

  continue reading

500 afleveringen

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