Beste Rawr The Podcast podcasts (2024)

1
RAWR with Jorden: How finding a community and giving back is the only way forward 1:24:02

1+ y ago1:24:02

1:24:02

Grab a coffee or a wine and enjoy this chat between friends - it's a goodie! This episode really does have a bit of everything, including Jorden's fight for a diagnosis from the very beginning for her handsome boy Lincoln, sibling comparisons, diving deep down the medical/disability rabbit hole (if you know, you know), finding a community who get i…

1
RAWR with Lizzy: “She’s mine and my responsibility and I’m her carer…forever.” 1:36:51

1+ y ago1:36:51

1:36:51

We had a very special guest join us for this episode – our friend Lizzy, AKA @mumof2pinks, who is super vulnerable in sharing her experience of being a full-time carer to her daughter Georgia. Lizzy breaks down the walls – and the stigma – and shares some hard (but oh so relatable) truths about losing her identity, the constant fight in all areas o…

1
We’re back, and still fighting the good fight! 1:39:38

1+ y ago1:39:38

1:39:38

We're back!! Welcome to what we’re calling Season Two, cos it makes it sound like we totally planned the 6 week break and have this all under control! But seriously, we are feeling FRESH and ready to keep fighting the good fight alongside our community of RAWR-ers. This week’s chat is just that – a RAWR Real Talk catch up between friends about ever…

1
RAWR with Emma: High-risk pregnancy, traumatic birth and societies unrealistic expectation of motherhood 57:20

1+ y ago57:20

57:20

Emma's BAAACK! RAWR's original co-host Emma came back for a 'no bullshit' check-in and to once again break the stigma surrounding some very important and poignant topics. We laughed, we cried and we didn't hold back talking about the anxiety and trauma of high-risk pregnancy after loss, as well as the lack of control and heartache we feel when thin…

1
Re-defining Tube Feeding: Squashing the myths and misconceptions of tubie life 1:05:05

1+ y ago1:05:05

1:05:05

This was SO much fun! In honour of the recent Feeding Tube Awareness Week (FTAW 2023), we wanted to squash the myths and misconceptions of tube feeding, and who else do you turn to other than the queens in this space?! We sat down with Melanie Dimmitt, author of The Blend, and Sarah Thomas, founder of Wholesome Blends, to share some of our own pers…

1
RAWR with Sarah from Wholesome Blends: Talkin’ real foods for your tubie 1:04:00

2y ago1:04:00

1:04:00

Happy Feeding Tube Awareness Week! In honour of FTAW, we invited the incredible powerhouse Sarah from Wholesome Blends onto the pod. Sarah is such a good time, she found a gap in the market as a consumer - she wanted and needed a product for her own tube fed child and couldn’t find – so she created it! We will let the expert herself tell you all ab…

1
BONUS Ep: RAWR with our little darlings Riley & Jack 13:13

2y ago13:13

13:13

Just because it's too cute not to share with the world!! Enjoy a bite-sized chat and some giggles with our little darlings Riley & Jack (with some Hanna & James mixed in!) We think they're pretty special!Door RAWR The Podcast

1
RAWR with Adelyn & James: Big sibling love 47:38

2y ago47:38

47:38

We sat down with our eldest darlings, Adelyn and James, and asked them about the ups and downs of life as big siblings and how they feel about Riley and Jack's disabilities and medical needs. Basically a whole bunch of cuteness that the world needs to hear! Enjoy! And you heard our little legends - please leave us a review, give us 5 stars, and sha…

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RAWR with Tori: Sharing the world of NICU from a nurse’s perspective 1:10:59

2y ago1:10:59

1:10:59

Introducing a VERY special guest to RAWR The Podcast, Tori Meskin aka Nurse Tori! Tori is an absolute powerhouse, she is a registered nurse with 10 years experience specialising in neonatal and paediatric intensive care, as well as a blogger, content creator, keynote speaker AND podcaster. She is a natural born leader and a positive and inspiring r…

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Advocating for your sick child: how it’s not always as simple as it seems 1:22:50

2y ago1:22:50

1:22:50

This week we talk about advocating and fighting for your child (we've all been there), the many different factors that come into play, and how it's not always as simple and easy as it seems. Alongside our own experiences, we break down the six main 'negative' themes identified in the blog titled 'The how to advocate for your child one' by Penny fro…

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All things NDIS with our girl Hayley! 1:32:05

2y ago1:32:05

1:32:05

We invited Hayley from Alee Disability Support Services onto the pod to discuss all things NDIS - plan reviews, gaining access, therapist reports, providing evidence, support coordination, ‘parental responsibility’, and so much more! We also answer some of the most frequent listener questions in this space and provide recommendations for support. T…

1
BONUS Episode: Christmas in Hospital 41:08

2y ago41:08

41:08

A sneaky bonus ep to catch us all up to date....basically sit in our Friday night therapy sesh where we chat through Grecian's Christmas in hospital with Riley. Nothing fancy, just the RAWR truths of being a medical mama. Happy New Year xDoor RAWR The Podcast

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RAWR Real Talk: All the usual bits, plus the loneliness of a hospital admission 1:11:13

2y ago1:11:13

1:11:13

It's been a little hectic, so we've dropped another Life Update on Jack and Riley...from Jack's recent psychologist appointment to Riley's ENT surgery and extended hospital stay. We discuss the usual bits - sleep, poop, and emotions - as well as the heart-wrenching juggle of hospital and home life, and a brief sneak peek into NDIS leading into the …

1
RAWR Real Talk: Life Update 1:10:20

2y ago1:10:20

1:10:20

We're back! It’s been a hot minute, so we’ve kept it very simple this week and just talked shit (at times literally) for the whole ep. Just your typical A & G life update, including: - The very real ups and downs of our recent family getaways – holidaying is just parenting in another place, right? - Riley update – ENT surgery and a well-deserved eq…

1
RAWR with Elle: The overwhelming joy of surrogacy following baby loss, cervical incompetence, infertility and premature birth 1:16:26

2y ago1:16:26

1:16:26

This week we chat with Elle, a mama of 2 boys up in the sky and 1 boy here on earth, with another little guy on the way via surrogate. Ellie’s story is another difficult one, but is also filled with hope, acceptance and gratitude. We discuss the loss of Elle's boys Taj & Lenny at 20 and 21 weeks of pregnancy, her battle with unexplained infertility…

1
RAWR Real Talk (Pt 2): Medical anxiety in all its shitty glory! 1:03:11

2y ago1:03:11

1:03:11

In Part 2 of this ‘Real Talk’ episode we give a life update before jumping into how and why we downplay our OWN shit to protect ourselves and others. We then get vulnerable by exposing some of the darker complexities of medical anxiety, including the ways we worry when our child improves medically. We then have a LOL (with you, not at you!) as we s…

1
RAWR Real Talk (Pt 1): Sit with the shit! 41:36

2y ago41:36

41:36

In Part 1 of this ‘Real Talk’ episode we talk about toxic positivity, also known as bright-siding, also known as the opposite of what we need as parents of children with medical and special needs! This topic comes up every single week, so we think it deserves its very own episode. We break down how toxic positivity is displayed, how it downplays an…

1
RAWR with Sophie from Running for Premature Babies: Turning tragedy and grief into hope and a $5 million purpose 1:16:36

2y ago1:16:36

1:16:36

Sophie is a hero in our eyes - and it's no surprise she has been publicly recognised as one. Her story and what she's created in response to her grief has already touched so many. In this episode, Sophie opens up about tragically losing her triplet sons and how she and her husband Ash founded the Australian registered charity Running for Premature …

1
RAWR with Krysten @the_therapist_parent: Tools, strategies and advice for real-life and relatable parenting situations 1:16:25

2y ago1:16:25

1:16:25

We’re so excited to welcome Krysten @the_therapist_parent to the podcast! Krysten is a highly-skilled and knowledgeable child psychologist with over 20 years experience working with children and families. We really made the most of her knowledge and covered so much, including… - Medical trauma - Can we be too lenient? - Sensory differences - Regula…

1
How to help your friend who has a baby in NICU 1:09:57

2y ago1:09:57

1:09:57

In this week’s episode Amy & Grecian go back to the beginning and talk about how to best help and support a friend who has a baby in NICU, as well as what not to do/say and the best gifts you can give – we’re not lying when we say the best gift is ‘doing’ without being asked! We recall the memorable things that people did to support us personally, …

1
RAWR with Danielle: Raising a child with a severe disability, high needs and the worlds biggest and best smile 1:31:24

2y ago1:31:24

1:31:24

In this episode we share a story that's different to anything else we've had here before, it's truly eye-opening and brings so much perspective. Danielle is a mum to 4 beautiful children, 3 girls all born healthy and 1 son Chase who has a rare genetic disorder. Danielle opens up about the overwhelming joys and sorrows of raising a child with a seve…

1
RAWR Real Talk: All things siblings, sleep and going back to work after maternity leave 1:28:35

2y ago1:28:35

1:28:35

In this week’s episode Amy & Grecian share a life update (gosh we love a chat!) before delving deep into siblings, sleep, and going back to work after maternity leave. We chat through the ups and downs of raising siblings with different needs, and the associated impact this can have on emotions and relationships. We then discuss all things sleep (y…

1
RAWR with Georgie: ‘One in a million’ Eve – A diagnosis without a name, 24/7 oxygen, frequent ICU stays and advocating for your child both medically and socially 1:09:59

2y ago1:09:59

1:09:59

In this episode we speak with Georgie, the incredible mama of ‘one in a million’ Eve, who has an incurable rare genetic lung and heart disease, the only one in Australia. Georgie talks about the unknowns of Eve’s condition and the realities of not having a proper diagnosis for your child, along with the ins and outs of having an older child on oxyg…

1
RAWR Real Talk: The school mum life juggle 59:21

2y ago59:21

59:21

This episode Amy & Grecian talk all about school mum life – the juggle of the morning rush, drop off and pick up, big emotions, dividing time between children, school holidays and the mental load of, well, everything! This one is suited to ALL mama’s, but we do of course touch on the extra hurdles and challenges we face with our ride or die darling…

1
RAWR Real Talk: Life update - the battle scars of a medical and special needs mama in the ’thick’ of it 1:20:12

2y ago1:20:12

1:20:12

This episode Amy and Grecian give a run down and life update on their tough past few weeks with Jack (lungs) and Riley (tube feeding), and we also answer some of your questions. We get real vulnerable and share our battle scars - sometimes we hurt in places we least expect it. This one's a bit of a rollercoaster, there's a lot of raw truths, tears …

1
RAWR with Rachel: A rare genetic disorder and IVF following two complicated pregnancies resulting in premature birth and infant loss 1:40:07

2y ago1:40:07

1:40:07

This week we chat to another downright phenomenal guest, Rachel, from @our_rough_journey on Instagram. Rachel is a mama to three beautiful children, one who is earthside and the other two who are sparkling bright in the sky. Rachel shares her story of a full-term stress-free pregnancy with her first child Kai, followed by two complicated pregnancie…

1
RAWR with Hayley: ‘My brain is dancing’ - Raising a neurodiverse child with autism, ADHD, anxiety, global developmental delay + more 1:07:27

2y ago1:07:27

1:07:27

We chat with another incredible guest this week, Hayley from @hayleyandtheboys_ivfmiracles. Hayley is an IVF warrior times two, the second time around they endured 23 rounds over multiple years. Throughout all of this, her first son Liam was diagnosed with global developmental delay, autism, ADHD and epilepsy, amongst others. In this episode we cha…

1
RAWR Real Talk (Pt 2): Therapies, oral aversion, sensory differences, challenging behaviours and medical trauma 47:02

2+ y ago47:02

47:02

In Part 2, Amy & Grecian focus on sensory differences, regulation of emotions, poo (all the poo!) and medical trauma in children. They talk through their own personal experiences with these everyday challenges, what has/hasn’t worked for them and trying to access supports and therapies for these specific areas. Mentioned in this episode: @the_thera…

1
RAWR Real Talk (Pt 1): Therapies, oral aversion, sensory differences, challenging behaviours and medical trauma 51:22

2+ y ago51:22

51:22

In Part 1, Amy & Grecian discuss the everyday juggle and challenges of therapies and the importance of finding the right team. They talk through their own personal experiences with oral aversion, feeding and speech delays, along with trying to find the right strategies to navigate challenging behaviours. This episode is sponsored by Busy Books Aust…

1
RAWR with Jade: Taking life one minute at a time as a mother battling BPD, PTSD and ADHD 1:13:49

2+ y ago1:13:49

1:13:49

This one is a little different and will affect you in a big way – it certainly left us in awe! Jade shares an unfiltered account of ‘taking life one minute at a time’ as a mother battling BPD, PTSD & ADHD. She shows a shitload of courage by stepping up and being a voice for an under-represented and invisible group in the hopes she can reach not onl…

1
RAWR with Justin: A Dad’s perspective of facing an anticipated yet unexpected diagnosis of cerebral palsy, epilepsy, GDD and possible autism 37:56

2+ y ago37:56

37:56

This week Grecian chats to her husband Justin about his experience as a father of a child with additional needs. Justin gives an honest and profound insight into navigating the everyday realities of Riley’s diagnosis of cerebral palsy, global developmental delay, epilepsy, and possible autism/sensory processing disorder. Together, Justin and Grecia…

1
RAWR Real Talk: The reality of navigating winter with a vulnerable child 1:08:24

2+ y ago1:08:24

1:08:24

Please join us for Grecian's very first episode as co-host!! We talk about the isolating, heart-breaking and downright frustrating realities of navigating winter with a vulnerable child. This episode has everything from the anxiety of everyday outings and fear of the common cold, to the impact of isolation (guilt, anyone?) and being made to feel ov…

1
RAWR with Mumma Bear: ”Double the pain” - The profound impact that hardships can have on our loved ones 48:37

2+ y ago48:37

48:37

This week Amy chats with her very own Mumma Bear, Robyn, about being both a Mum and a Nanna who has closely experienced all the hardships alongside her daughter over the past 8-ish years. Robyn provides a valuable insight into the profound impact that infertility, NICU and special needs can have on our loved ones and our biggest supporters. She des…

1
RAWR with Jade: ”We left no stone unturned” - The Story of Toby 1:09:57

2+ y ago1:09:57

1:09:57

If there was ever anyone that perfectly represented the RAWR community, it’s Jade! In this episode, Jade shares the story of Toby, who sadly passed away after 204 days in NICU. She opens up about the lead-up to Toby’s premature birth, followed by his long turbulent NICU journey, where she became an expert and advocated hard until the end, leaving n…

1
RAWR with Grecian: All things twins, including high risk pregnancy, premature birth, NICU life and beyond! 1:05:43

2+ y ago1:05:43

1:05:43

Amy chats to Grecian about the premature birth of her twins, the push-pull of having two babies in the nursery, how a subsequent baby can bring a sense of healing, and the frustration of fighting for a diagnosis. There’s sooo many relatable ‘nodding along’ moments in this one, we hope you love it! *This episode also includes an update on RAWR movin…

1
RAWR with Scott (Pt 2): The highs & lows of being a special needs Dad 47:17

2+ y ago47:17

47:17

"We don't treat him any differently but we just do stuff differently". Part 2 of Amy's chat with her husband Scott focuses on the highs and lows of being a special needs Dad. Scott talks about receiving a diagnosis, the toll of a relentless schedule and how he feels as a father supporting his child through medical trauma. Scott gives a beautiful in…

1
RAWR with Scott (Pt 1): Riding the Waves of NICU & Special Care. 49:48

2+ y ago49:48

49:48

This week Amy chatted with her husband and biggest supporter Scott (well, Amy chatted, and Scott sat 😆) about riding the waves of NICU and Special Care. We recalled everything from riding the lifts with an esky, to sneakily taking bubs temperature again when it wasn’t quite high enough! Scott gives some insight into being on the ‘other side’ of a t…

1
RAWR with Nadine: An insight into a lengthy NICU and hospital stay during covid lockdowns, 5 hours away from home and with other children in tow! 37:45

2+ y ago37:45

37:45

A ’short and sweet’ episode this week introducing Miracle Mumma’s newest team member Nadine to the wider premmie and NICU community! Nadine shares her experience of having a 25-weeker after two full-term babies and has some touching insights into enduring a lengthy NICU and hospital stay during covid, the added isolation of being a long way from ho…

1
RAWR with Kasey & Trent: The toll of enduring child loss and a subsequent high-risk pregnancy and NICU journey 1:06:04

2+ y ago1:06:04

1:06:04

This episode is a special one! We are joined by the incredibly inspiring and much-loved members of the premmie, NICU and loss community, Kasey & Trent Brooks. We chat about the toll of enduring child loss and a subsequent high-risk pregnancy, along with grief, men's mental health (the realities of being a NICU Dad) and what the future holds. We hop…

1
RAWR with Tara (Pt 2): The impact, repercussions and ongoing challenges of a diagnosis 54:10

2+ y ago54:10

54:10

We welcome Tara back to the pod (from ep. 12) to talk about the impact, repercussions and ongoing challenges of a disability diagnosis. We touch on the feelings of both anger and relief that can come with a diagnosis, how we struggle to advocate for ourselves, our natural desire to protect and shield others, and the challenges of good ol’ social me…

1
For Willow: The grace of holding space 58:24

2+ y ago58:24

58:24

This episode is dedicated to Willow Mae Bone. 29/4/20 - 28/4/21. Forever in our hearts and shining brightly in the sky. This week we honour the memory of Willow. Amy invites Kate from 'Milkshakes for Marleigh' and Emma from 'The Carers Club' to talk about holding space for grief and honouring special dates and anniversaries, while remembering Willo…

1
RAWR with Tara (Pt 1): Jude’s brave fight with GBS sepsis, meningitis and open heart surgery. 1:05:31

2+ y ago1:05:31

1:05:31

In this week's episode, Tara shares the journey of her warrior Jude, who fell devastatingly ill at just a few weeks of age. Their lives as they knew it were sent into complete turmoil and nothing could have prepared them for the challenges and devastation they were faced with, including sepsis, seizures, meningitis, brain damage and a congenital he…

1
’RAWR Real Talk’ with Emma & Amy: It’s ok to take a break 1:03:22

2+ y ago1:03:22

1:03:22

In our first 'RAWR Real Talk' episode we go back to the basics and have a casual chat about life - the good, the bad and the ugly. Emma talks about her recent break from the pod, sharing her truths and vulnerabilities about how despite society's expectations, grief doesn't get easier a year on. And Amy talks us through where they're at with Jack an…

1
RAWR with Dr. Ray Yoong (Infertility Pt 2): A professional insight into all things infertility with an expert in the field 1:14:51

2+ y ago1:14:51

1:14:51

We chat with Amy's fertility specialist Dr. Ray Yoong about all things infertility. Join us for an unfiltered and informative discussion about everything from endometriosis, AMH levels and laparoscopic surgery, to the hard conversations and when to say no. This is an episode everyone can learn something from and one that every woman needs to hear! …

1
RAWR with Olivia (Infertility Pt 1): Endometriosis, chemically induced menopause, egg and embryo preservation & IVF 1:16:41

2+ y ago1:16:41

1:16:41

Infertility warrior Olivia shares her ongoing struggle with severe endometriosis and adenomyosis, including multiple surgeries, chemically induced menopause, egg & embryo preservation and IVF. Liv opens up about this taboo subject with such courage and grace in the hopes that others can stop suffering in silence. She says "we celebrate pregnancies …

1
RAWR with Hayley: The misconceptions & realities of parenting her ’chromie cutie’ Pippa, a cancer diagnosis, finding the right supports and giving back! 55:10

2+ y ago55:10

55:10

This week we had a chat with one of our fav SuperMama's Hayley about the misconceptions of parenting a child with a chronic medical condition and invisible disability, the psychological impact of medical trauma and a child's subsequent need for control, Hayley's recent cancer diagnosis, and her firecracker daughter Pippa who is the face of a very s…

1
RAWR with Sydney: The story of heart warrior Carmen & her Miracle Makers 56:37

2+ y ago56:37

56:37

This episode we chat to Sydney Hatcher, founder of Carmen's Miracle Makers, three-time author, and above all, mother to four girls, one of which resides in heaven. We discuss the loss of Sydney's 'heart warrior' daughter Carmen, including their long PICU stay and how Sydney found hope and brightness in the small but mighty moments. Pain and passion…

1
Taking your Premature Baby home from NICU 1:02:47

2+ y ago1:02:47

1:02:47

This week we discuss the unknown and unexpected challenges of taking your premature baby home from hospital, including the misconceptions, guilt, grief, loneliness, self-doubt and lack of support. The premmie journey doesn't end when you leave NICU, and for some, it is just the beginning. We're here to remind you that there's a community of parents…

1
Medically Complex Parenting with Kate from Milkshakes for Marleigh 1:08:31

2+ y ago1:08:31

1:08:31

This week we chat with Kate from 'Milkshakes for Marleigh' about the realities of parenting medically complex kids, including carer burnout, isolation, NDIS, medical trauma and the things people should never say! We provide invaluable first-hand insight and advice while reflecting on our own experiences and coping strategies, with the hopes of maki…

1
RAWR with Dani: Premature birth, NICU, 8 surgeries & life-long complications 51:21

2+ y ago51:21

51:21

This week we introduce our very first guest, Dani, who nearly lost her daughter Mahlia multiple times, enduring 8 surgeries and spending 310 days of her first year in hospital. Mahlia now lives with short bowel syndrome, a life-long condition requiring IV nutrition via a central line in her chest. Dani is a true inspiration and very loved member of…

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