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Living with EDS, POTS, and MCAS: Judith shares her Family's Journey.
Manage episode 451164933 series 2982348
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Judith, hailing from the United States, delved into the intricacies of navigating familial medical challenges associated with Ehlers-Danlos syndrome (EDS), postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS). She candidly shared her personal journey of grappling with joint pain and instability stemming from EDS, while also shedding light on the diverse array of symptoms experienced by her children, including gastrointestinal issues, scoliosis, mast cell problems, and POTS. Of particular note were the severe manifestations experienced by Judith's middle child, encompassing convulsive syncope and migraines. Overcoming the hurdles of obtaining accurate diagnoses, Judith sought solace in the expertise of specialists, subsequently finding some respite through a combination of tailored medications and therapeutic interventions.
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