Part II: Living with DMG, Xavier's Story with Philip Tan

Childhood Cancer Talk Radio Podcasts

This podcast is a continuation of our March 3 show, "Living with DMG: Scientist Father Philip Tan blazes a Trail for Xavier", where Xavier's father Philip gave us and extensive window into the life of his family and how it had changed since the diagnosis of a deadly brain tumor. In part 2 we address more closely the restrictive nature of clinical trials, and the fact that using drugs off trial allows flexibility to use other drugs, supplements, and other therapies in combination. Also, the family was discouraged from traveling while there were no promising clinical trials being offered at their local children's hospital; Philip thought, "It shouldn't be so hard," as he was seeking ONC201 and found through social media that he could obtain it for Xavier in Germany, of course for an enormous cost. Philip is intent on sharing his information, raising awareness and blazing new trails so that others won't have to go to the lengths--many of which have not been as effective as he had wished--to extend and save the life of his son.