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Inhoud geleverd door Childhood Cancer Talk Radio Podcasts. Alle podcastinhoud, inclusief afleveringen, afbeeldingen en podcastbeschrijvingen, wordt rechtstreeks geüpload en geleverd door Childhood Cancer Talk Radio Podcasts of hun podcastplatformpartner. Als u denkt dat iemand uw auteursrechtelijk beschermde werk zonder uw toestemming gebruikt, kunt u het hier beschreven proces https://nl.player.fm/legal volgen.
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2.0: Gabriella Miller Kids First Research Act, with Ellyn Miller

 
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When? This feed was archived on April 14, 2023 20:25 (1y ago). Last successful fetch was on March 04, 2023 20:43 (1y ago)

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What now? You might be able to find a more up-to-date version using the search function. This series will no longer be checked for updates. If you believe this to be in error, please check if the publisher's feed link below is valid and contact support to request the feed be restored or if you have any other concerns about this.

Manage episode 317361561 series 2448731
Inhoud geleverd door Childhood Cancer Talk Radio Podcasts. Alle podcastinhoud, inclusief afleveringen, afbeeldingen en podcastbeschrijvingen, wordt rechtstreeks geüpload en geleverd door Childhood Cancer Talk Radio Podcasts of hun podcastplatformpartner. Als u denkt dat iemand uw auteursrechtelijk beschermde werk zonder uw toestemming gebruikt, kunt u het hier beschreven proces https://nl.player.fm/legal volgen.
This episode highlights H. R. 623, important funding legislation for a crucial program at NIH for childhood disease research. Ellyn Miller, CEO of Smashing Walnuts Foundation, joins us to share the history of this legislation as well as the work today and forward into this new year supporting this and other activity in the childhood cancer advocacy community. Ellyn's daughter Gabriella passed away in 2013 to DIPG, diffuse intrinsic pontine glioma, but she went out with a huge movement forward for pediatric research. Her enthusiasm and advocacy for other children was caught on tape that went viral and inspired the Gabriella Miller Kids First Research Act signed into law by President Obama in 2014 with her family members, including her little brother Jake, all present. Ellyn's storytelling is captivating, and the magic of Gabriellas legacy is palpable, and powerful in the telling. Visit: childrenscancercause.org advocacy action page to support this crucial legislation today.
  continue reading

263 afleveringen

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iconDelen
 

Gearchiveerde serie ("Inactieve feed" status)

When? This feed was archived on April 14, 2023 20:25 (1y ago). Last successful fetch was on March 04, 2023 20:43 (1y ago)

Why? Inactieve feed status. Onze servers konden geen geldige podcast feed ononderbroken ophalen.

What now? You might be able to find a more up-to-date version using the search function. This series will no longer be checked for updates. If you believe this to be in error, please check if the publisher's feed link below is valid and contact support to request the feed be restored or if you have any other concerns about this.

Manage episode 317361561 series 2448731
Inhoud geleverd door Childhood Cancer Talk Radio Podcasts. Alle podcastinhoud, inclusief afleveringen, afbeeldingen en podcastbeschrijvingen, wordt rechtstreeks geüpload en geleverd door Childhood Cancer Talk Radio Podcasts of hun podcastplatformpartner. Als u denkt dat iemand uw auteursrechtelijk beschermde werk zonder uw toestemming gebruikt, kunt u het hier beschreven proces https://nl.player.fm/legal volgen.
This episode highlights H. R. 623, important funding legislation for a crucial program at NIH for childhood disease research. Ellyn Miller, CEO of Smashing Walnuts Foundation, joins us to share the history of this legislation as well as the work today and forward into this new year supporting this and other activity in the childhood cancer advocacy community. Ellyn's daughter Gabriella passed away in 2013 to DIPG, diffuse intrinsic pontine glioma, but she went out with a huge movement forward for pediatric research. Her enthusiasm and advocacy for other children was caught on tape that went viral and inspired the Gabriella Miller Kids First Research Act signed into law by President Obama in 2014 with her family members, including her little brother Jake, all present. Ellyn's storytelling is captivating, and the magic of Gabriellas legacy is palpable, and powerful in the telling. Visit: childrenscancercause.org advocacy action page to support this crucial legislation today.
  continue reading

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