WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount! Visit: www.WeHaveAFace.org/Radio for more information.
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Host, Kevin Jess, talks about Rare Disease Day which is just around the cornerDoor WeHaveAVoice
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New Guidelines to Revolutionize Care for Huntington's Disease Patients
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Kevin Jess talks about recent papers published and about to be published concerning changing the diagnostic criteria for HDDoor WeHaveAVoice
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Bunny Clark and the 10th Annual Huntington's Heroes Walk
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Bunny Clark talks about The Walk for Huntington's Disease May 28thDoor WeHaveAVoice
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Erin Paterson - Huntington's Disease Heroes
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Door WeHaveAVoice
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WeHaveAFace! What's next?
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Kevin Jess announces charity closings and discusses what's next for WeHaveAFace.Door WeHaveAVoice
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Kevin Jess talks about the feeling of worthlessness and how the media may drive this feeling.Door WeHaveAVoice
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Coffee Talk with Kevin and Jen (Chat #7)
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Jen and Kevin discuss possible implications of the overturning of Roe v Wade for the Huntington's CommunityDoor WeHaveAVoice
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Coffee Talk with Kevin and Jen (Chat #6)
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Jen and Kevin talk about hope, testing and other topicsDoor WeHaveAVoice
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Coffee Talk with Jen and Kevin (Chat #5)
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Kevin and Jen talk about a number of things but are focusing on the upcoming International Education Day, June 25Door WeHaveAVoice
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Kevin speaks about memories and nurturing relationships
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Kevin talks about memories of his wife Sheila and how it's important to nurture friendshipsDoor WeHaveAVoice
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Coffee Talk with Jen and Kevin (Chat 4)
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Jen gets an unexpected call and discussion ensues.Door WeHaveAVoice
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Coffee Talk with Jen and Kevin (Chat #3)
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Jen and Kevin chat about disappointments over the years in the Huntington's Disease communityDoor WeHaveAVoice
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Coffee Talk with Jen and Kevin (Chat #2)
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Jen and Kevin chat about the death of a loved one and strategies leading up to and after death.Door WeHaveAVoice
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Coffee Talk with Jen and Kevin (Chat 1)
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Kevin and Jen kick off a series of coffee talks concerning Huntington's DiseaseDoor WeHaveAVoice
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James Valvano and what's next for WeHaveAFace
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James speaks about the Project Change and an array of topicsDoor WeHaveAVoice
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Dr. Herwig Lange and James Valvano discuss why it is necessary to change the diagnostic criteria for Huntington's Disease
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Dr. Herwig Lange and James Valvano discuss why it is necessary to change the diagnostic criteria for Huntington's Disease. To watch this episode with video, please go to https://www.youtube.com/watch?v=ZJs8EHEPMagDoor WeHaveAVoice
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Louise Vetter concerning support for changes to the current diagnostic criteria for Huntington's Disease
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Louise Vetter (President and CEO of HDSA) underscores her support for the initiative to change the current diagnostic criteria and introduces the new Huntington's disease support platform - #PatientsLikeMeDoor WeHaveAVoice
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Erin Paterson speaks about having Huntington's Disease and starting a family
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Erin speaks with Kevin about her 5 1/2 year struggle with fertility amidst having a diagnosis of HDDoor WeHaveAVoice
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Kevin Jess speaks candidly about the recent death of his wife Sheila
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Kevin Jess speaks about his wife Sheila, how they met up until her recent passing.Door WeHaveAVoice
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WeHaveAVoice: HDSA - HD Parity Act with Jennifer Simpson!
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Please listen to James Valvano interview Jennifer Simpson HDSA on the HDParityAct! It's time to pass the HD Parity Act and remove the two-year waiting period for Medicare and SSDI! We must communicate the dire need of these medical supports and services to the US Congress!Door WeHaveAVoice
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#WeHaveAVoice Radio - May is #HuntingtonsDisease and #JuvenileHuntingtonsDisease Awareness Month! Our incredible special guest is John Howard! John recites his powerful poetry! #iHeartRadio #LetsTalkAboutHD #YouAreLovedDoor WeHaveAVoice
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On May 11, 2021, James Valvano will interview Jennifer Simpson (HDSA Assistant Director, Youth & Community Services), to discuss the HD Parity Act! ALS just recently made drastic changes to the description of what ALS is. They furthered their efforts by having unanimous consent by Congress to pass their bill for patients to obtain immediate access …
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Jimmy Pollard - Finding Nana's Smile
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Jimmy Pollard talks about his new children's book, Finding Nana's SmileDoor WeHaveAVoice
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James Valvano: Season 1 of WeHaveAFace TV
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Kevin Jess interviews James Valvano about the first season of WeHaveAFace TVDoor WeHaveAVoice
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Dr. Finn of the Mayo Clinic: How and when to talk to children about Huntington's disease.
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Dr. Kelsey M. Finn is a geneticist, bioethicist, and empathy enthusiast. Dr. Finn has devoted a large part of her career to researching whether, when, and how to communicate about genetic conditions and health information with children. She has interviewed countless parents, kids, and health providers to learn from their experiences and perspective…
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Dr. Bird of the University of Washington speaks about the HDSA Centers of Excellence
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Dr. Bird of the University of Washington speaks about the HDSA Centers of Excellence. Dr. Herwig Lange of the George Huntington Institute of Germany joins the conversation. Topics: What is a Center of Excellence (CoE)? How does a facility become a Center of Excellence? Should doctors diagnose patients earlier so a treatment plan can be put in place…
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Grandma has HD and it's okay with Dr. Kelsey Finn
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Dr. Kelsey Finn speaks about when to talk to your children about Huntington's Disease and her new children's book.Door WeHaveAVoice
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HD/JHD Facebook Wish List. What's that about?
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Marie Blankenshop, Jen Almeida and Crystal Zachary speak out their new Facebook Wish List groupDoor WeHaveAVoice
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Coping with separation anxiety during Covid-19 pandemic
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Dr. Susan Potter and Dr. Herwig Lange tackle a serious issue concering separation anxiety during the pandemic.Door WeHaveAVoice
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#WeHaveAFace #WeHaveAVoice - Carol Kennedy (President of WHAF England and Wales) HD3 Training Program and COVID-19 Discussion
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#WeHaveAFace #WeHaveAVoice - Carol Kennedy (President of WHAF England and Wales) HD3 Training Program and COVID-19 Discussion.Door WeHaveAVoice
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A trip down memory lane with Mary Etta Robertson
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Mary talks with Leanne and Kevin about yesterday and todayDoor WeHaveAVoice
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German Dr. Ansgar Klimke: New approach for hydroxychloroquine in aerosol form for COVID-19
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#WeHaveAVoice Radio! German Doctor: Dr. Ansgar Klimke - New approach for hydroxychloroquine in aerosol form for #COVID19 #Coronavirus #Spreaker #CDC #WHODoor WeHaveAVoice
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WeHaveAVoice: Discussing the Coronavirus (COVID-19)
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#WeHaveAFace #WeHaveAVoice: Discussing the Coronavirus (COVID-19) - #Coronavirus #COVID19 #CDC #HuntingtonsDiseaseDoor WeHaveAVoice
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Cherry Chism: When you leave the Roche clinical trial
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Cherry Chism talks about her husband leaving the Roche TrialDoor WeHaveAVoice
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Louise Vetter, President and CEO of HDSA: HD Trial Finder
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Louise Vetter, President, and CEO of the Huntington's Disease Society of America (HDSA) speaks with James Valvano about the HD Trial Finder. We must broaden awareness of studies and trials for our Huntington's disease population.Door WeHaveAVoice
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Dr. Peg Nopoulos: KidsHD/ChANGE-HD
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Dr. Peg talks about the ChAND-HD trial.Door WeHaveAVoice
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Jonathan Monkemeyer Rare Disease Day
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Jonathan speaks to us about Rare Disease Day event as well as reusing existing drugs to treat or cure HD/JHDDoor WeHaveAVoice
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James Valvano: New Horizons After 2020
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WeHaveAFace founder, James Valvano talks about his upcoming retirement and the future of WeHaveAFace.Door WeHaveAVoice
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Jimmy Pollard of CHDI: HD Education on a Global Scale
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Jimmy Pollard talks about his experiences and imparts lessons to apply to HD caregiving.Door WeHaveAVoice
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Gene Veritas: CHDI Therapeutics Conference
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Gene Veritas talks about his recent attendance at the CHDI Therapeutics Conference.Door WeHaveAVoice
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Karen Marais: HD in South Africa
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Karen Marais talks about her relationship with her partner Chris who has Huntington's DiseaseDoor WeHaveAVoice
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Advocating in suicide prevention and other topics with Sarah Warehime and Dr. Herwig Lange
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Leanne and Kevin speak with Sarah Warehime, a beginner as a suicide prevention advocate and Dr. Herwig Lange. We talk about a range of topics including suicide prevention and how to get involved.Door WeHaveAVoice
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A caregivers experience with behaviorial issues with Huntington's Disease
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"Kay" talks about her relationship with her best friend who has Huntington's Disease and how her mood swings are affecting important decisions she has to make.Door WeHaveAVoice
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Kevin Jess reads an excerpt from his novel that is still in progress.Door WeHaveAVoice
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One woman's experience with testing for Huntington's Disease
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Kevin Jess talks with his daughter about her recent experience with testing for Huntington's DiseaseDoor WeHaveAVoice
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Our panel of speakers for our Convention in November, 2019Door WeHaveAVoice
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James Valvano talks with Kevin about his climb in Scotland
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James Valvano speaks with Kevin about his mountain climb at Ben Nevis, Scotland and a talk about future shows.Door WeHaveAVoice
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Juvenile Huntington's Disease: A Story of Friendship
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Kevin speaks with Rebecca Bratt, Erin Wade's best friendDoor WeHaveAVoice
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Kevin and Leanne speak with Cindy Moore, President of WeHaveAFace CanadaDoor WeHaveAVoice
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Episode 104 - Milestones
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Kevin Jess talks about milestonesDoor WeHaveAVoice
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