Personal essays from the front lines of care
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Abortion Care Is Essential Medical Care
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An abortion care provider shares stories from the front line and urges physicians to defend abortion care access within their communities. Read by author Rachel Jensen. If you enjoy this essay, order the Health Affairs February 2023 issue.Door Health Affairs
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Keeping Quiet About Genetic Risk
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Failing to protect people at risk for genetic disease from discrimination may have a silencing effect and erode trust in the patient-provider relationship. Read by author Susanna Smith. This article is a reworked excerpt from an unpublished book manuscript. If you enjoy this essay, order the Health Affairs March 2023 issue.…
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Understanding Pandemic Experiences Among America’s Elders
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Older Americans’ experiences of the COVID-19 pandemic, including social isolation and loneliness, generosity, and resilience, must be studied and addressed. Read by authors Louise Aronson and Ashwin Kotwal. If you enjoy this essay, order the Health Affairs December 2022 issue.Door Health Affairs
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Standing Up For My Sister
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Integrating family caregivers into the health care team is particularly important for patients with intellectual disabilities. Read by author Duke University's Courtney Van Houtven. If you enjoy this essay, order the Health Affairs theme issue on disability and health.Door Health Affairs
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A Health System That Won't Learn From Its Mistakes
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When a patient dies from a medical error, there often is no recourse for the family. Read by author Chandra Keller. If you enjoy this essay, order the September 2022 Health Affairs issue.Door Health Affairs
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Echoes of Trauma: Post-Intensive Care Syndrome
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Post–intensive care syndrome affects many patients discharged from the acute care setting. Read by author Joanna Bayes. If you enjoy this essay, order the August 2022 Health Affairs issue.Door Health Affairs
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As Hospitals Restrict Visitors, What Constitutes A ‘Good Death’?
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During the COVID-19 pandemic, a narrow view of patients’ and families’ preferences has led to the unjust application of policies meant to accommodate dying patients and their families. Read by author Nora Osman Segar from Yale New Haven Hospital and Yale Medical School. If you enjoy this essay, order the June 2022 Health Affairs issue.…
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Halfway Around The World, Echoes Of Physician Moral Injury
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A physician seeks respite from the injustice of US care delivery but encounters familiar signals of system failure abroad. Read by author Jason Prior. If you enjoy this essay, order the May 2022 Health Affairs issue.Door Health Affairs
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A Washington insider discusses lessons learned from communicating about the HIV/AIDS pandemic and current failures to talk effectively about COVID-19. Read by author Richard Sorian from 340B Health. If you enjoy this essay, order the March 2022 Health Affairs issue.Door Health Affairs
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Honoring Dr. Shalon Irving, A Champion for Health Equity
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Shalon Irving’s 2017 death brought national attention to maternal mortality among Black women in the US. This essay remembers her life and legacy. Read by Wanda Irving, chair of the board of Dr. Shalon’s Maternal Action Project. If you enjoy this essay, order the February 2022 Health Affairs Racism and Health theme issue.…
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After A Death, Bringing Stillbirth Prevention To The US
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A mother whose son was stillborn at thirty-six weeks is working to import stillbirth prevention policies from abroad. Read by author Marny Smith, assistant director of Graduate Career Services at the Austin W. Marxe School of Public and International Affairs at Baruch College. If you enjoy this essay, order the January 2022 Health Affairs issue.…
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To Uncover My Mother's Genetic Disorder, I Had To Lead The Way
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A genetic counselor uses her own resources to identify the root cause of her mother’s changing personality. Read by author Shivani Nazareth, certified genetic counselor and product manager at Invitae, and a visiting lecturer at the Icahn School of Medicine at Mount Sinai. When Nazareth’s mother became ill, symptoms pointed to dementia but potential…
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Opening Up About My Struggle With Recurring Depression
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A health care leader shares her story of living with major depression and calls for better treatments. Read by author Nora Super, senior director of the Milken Institute Center for the Future of Aging and the executive director of the Milken Institute Alliance to Improve Dementia Care. “I decided to share my story because I think so many of us who …
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Perinatal Mental Illness Nearly Ended My Life
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A psychiatry professor’s recovery from perinatal depression drives her research to facilitate practice and policy change. Read by author Kara Zivin, a research career scientist at the Veterans Affairs Ann Arbor Healthcare System, and a senior health researcher at Mathematica. Order the October Perinatal Mental Health Theme Issue.…
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‘Long COVID’: Making The Invisible Visible
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After recovering from acute COVID-19 infection, a physician is stricken with the debilitating symptoms of long COVID. Read by author Maria Victoria Bovo, a pediatric gastroenterologist at the Hospital Germans Trias i Pujol, in Badalona, Spain. Order the September issue of Health Affairs.Door Health Affairs
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"Long COVID": Hacer Visible Lo Invisible
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Después de recuperarse de una infección aguda por COVID-19, un médico sufre los síntomas debilitantes del COVID prolongado. Leído por la autora María Victoria Bovo, gastroenteróloga pediátrica del Hospital Germans Trias i Pujol, en Badalona, España. Solicite la edición de septiembre de Health Affairs.…
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'Remain In Mexico': Stories Of Trauma And Abuse
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Two families’ stories—a separation at the border and an assault in a migrant shelter—show the horrific dimensions of US migration policy. Read by co-author Alfonso Mercado from the University of Texas Rio Grande Valley. Order your copy of the July 2021 issue of Health Affairs.Door Health Affairs
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As a mother with COVID-19, I faced stigma and shame
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Childbirth can be an extremely stressful time in any period. Imagine delivering a baby during a global pandemic, just hours after testing positive for COVID-19 despite taking public health precautions. In this episode of the Narrative Matters podcast, Sara Edmond talks about testing positive for COVID-19 shortly before the birth of her daughter, an…
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The hidden curriculum of hospice: die fast, not slow
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Hospice care is meant to optimize quality of life and minimize sources of distress at the end of life. In theory, enrollees are entitled to an unlimited number of days of hospice care, though they have to be recertified after 6 months. But in practice, some patients end up discharged alive rather than re-enrolled. In this episode of the Narrative M…
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Charity care needs to be better than this
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Charity care is health care that is provided for free or at a reduced cost to eligible patients, with no expectation that the patient will pay. Under the Affordable Care Act, nonprofit hospitals are required to provide charity care to eligible patients, or risk losing their tax-exempt status. But data show large variation in how much charity care h…
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General medical education should not be a commodity
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In June 2019, Hahnemann University Hospital, a teaching hospital that had served poor residents in Philadelphia for more than 170 years, filed for bankruptcy and, within months, closed its doors for good. The complex story of its closure, after being purchased by a private equity executive, highlights concerns with health care finances and how phys…
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COVID-19 through the eyes of a black medical student
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In the face of the racial health disparities made more visible during the COVID-19 pandemic, statistics tell only part of the story. Read by author Shuaibu Ali, a medical student at Dartmouth College.Door Health Affairs
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Out of options for patients with serious mental illness
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A woman with serious mental illness cycles between a state hospital, shelters, nursing homes, and psychiatric units, with no permanent place to land. Read by the author Brian Scott Barnett, a staff psychiatrist at Cleveland Clinic.Door Health Affairs
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Climate migration and the future of health care
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A physician treats two patients who were forced from their home countries by extreme weather associated with climate change. Read by author Katharine Lawrence from the New York University Grossman School of Medicine.Door Health Affairs
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This, too, is what racism feels like
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After George Floyd’s killing, a physician reflects on how the health effects of racism become embodied for her and other Black Americans. Read by author Brooke Cunningham, originally published in November 2020.Door Health Affairs
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A mother in wonderland: securing services for my blind child
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A parent navigates complex education policy to secure services and supports for her blind child. Read by author Carla Keirns, originally published in October 2020.Door Health Affairs
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Challenges in ensuring the quality of generic medicines
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A refill of a generic attention deficit hyperactivity disorder prescription leads to new side effects and raises questions about the quality of generic drugs. Read by Kevin Schulman, originally published in September 2020.Door Health Affairs
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A patient with COVID-19 is left behind as care goes virtual
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Virtual strategies for health care visits during a pandemic must not exclude marginalized patients. Read by author Kumara Sunday, originally published in August 2020.Door Health Affairs
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An understaffed hospital battles COVID-19
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During the peak of the COVID-19 pandemic, staffing ratios reached untenable levels. Read by author David Scales, originally published in August 2020.Door Health Affairs
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Protecting access to abortion during the COVID-19 pandemic
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Several states attempted to deem abortions nonessential during the COVID-19 pandemic, leaving some women with difficult choices. Read by author Maryl Sackeim, originally published in August 2020.Door Health Affairs
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Finding time for compassion in a busy emergency department
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A medical error in the emergency department causes emotional trauma for a patient, who seeks compassion in the aftermath. Read by author Angela Blood, originally published in July 2020.Door Health Affairs
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Racism in my medical education
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An Asian American physician calls for more diversity and a commitment to health equity in US medical schools. Read by author Michelle Ko, originally published in June 2020.Door Health Affairs
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Held against our wills: reimagining involuntary commitment
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Involuntary psychiatric treatment for people with serious mental illness should focus on returning to health instead of reducing danger. Read by author Abraham Nussbaum, originally published in May 2020.Door Health Affairs
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These three poems won the 2019 Narrative Matters poetry contest. Read by authors Anjali Jain, Ronald Valdiserri, and Alex Sievert, originally published in April 2020.Door Health Affairs
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The power of access to affordable care
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A patient and student with severe asthma chases adequate insurance coverage until the Affordable Care Act provides something more. Read by author Rachel Stern, originally published in March 2020.Door Health Affairs
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There’s no algorithm for empathy
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When physicians rely on a behavioral "recipe" to convey empathy, patient care can suffer. Read by author Hannah Wild, originally published in February 2020.Door Health Affairs
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To treat my patient, I had to understand her trauma
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A patient who is a survivor of abuse benefits from a health care approach that acknowledges her past trauma. Read by author Eve Rittenberg, originally published in January 2020.Door Health Affairs
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When people you love are the unintended consequences of opioid policy
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After the release of federal guidelines to curb opioid misuse, a patient is unable to obtain effective pain treatment and dies from complications. Read by author Mary Beth Foglia, originally published in December 2019.Door Health Affairs
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Measles, mumps, and communion: a vision for vaccine policy
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A pediatrician offers a vision for vaccine policy that promotes public health while respecting religious beliefs. Read by author Joshua Williams, originally published in November 2019.Door Health Affairs
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My struggle to access lifesaving mental health care
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A patient must overcome systemic hurdles to stay on the only effective treatment for her depression: ketamine. Read by author Ashley Clayton, originally published in April 2019.Door Health Affairs
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'Go back to California': when providers fail transgender patients
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A transgender doctor is mistreated by a health care provider — and wants to make the system better for patients like her. Read by author Laura Arrowsmith, originally published in September 2017.Door Health Affairs
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Good patient care is found not on a computer screen but in being truly present with patients. Read by author Abraham Verghese, originally published in October 2016.Door Health Affairs
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Asthma and injustice on Chicago's Southeast side
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A physician discovers a potential environmental link to asthma attacks in a poor Chicago community. Read by author Kohar Jones, originally published in May 2016.Door Health Affairs
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'I don't want Jenny to think I'm abandoning her': views on overtreatment
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A palliative care physician helps a cancer patient cope with her coming death, while her oncologist struggles to give up treatment. Read by author Diane Meier, originally published in May 2014.Door Health Affairs
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Undocumented immigrants and kidney transplant: costs and controversy
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A nephrologist's patient is ideally suited for kidney transplant — except that he is an undocumented immigrant. (read by author Vanessa Grubbs, originally published in February 2014)Door Health Affairs
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