Childhood Cancer openbaar
[search 0]
Meer

Download the App!

show episodes
 
Childhood Cancer Talk Radio promotes Awareness of this very real and prevalent affliction, providing a forum for conversation and advocacy in a growing community of affected families, de-mystification of the experience with personal stories, information and resources. Let us be your voice. We aim to help people connect and support one another, and be a voice for prioritizing our children in cancer research.
 
Loading …
show series
 
John Beltzer, CEO and Founder of "Songs of Love" Foundation shares with Childhood Cancer Talk Radio the personal inspiration behind the Songs of Love Foundation, based in New York City. As a way of providing sick children with an ongoing source of comfort and joy, and a therapeutic tool for healing, he set out to create personalized, one-of-a-kind …
 
Do you ever stop to think about how you talk to yourself? Is your internal dialogue contributing to insecure parenting? In this episode I discuss how compassionate parenting starts with the ways we talk to ourselves. I give practical advice on how to become more aware of our inner dialogue. Disclaimer: All opinions are my own and not those of my em…
 
Featured in this episode which opens Childhood Cancer Awareness Month 2022, is Congressman McCaul's opening remarks to the Moonshot4Kids Childhood Brain Cancer Briefing on May 17, 2022. A unique window into testimony follows his remarks which will be included in a video briefing for Members of the House Health Subcommittee of Energy and Commerce re…
 
Today’s show features the story of Megan Bugg, an inspired and determined teenage girl who was a fierce advocate and unstoppable force for childhood cancer awareness and research. Despite the tragic and recent end to her physical life, her spirit lives on in her legacy and loved ones to whom she’s entrusted the continuance of her mission, to end ch…
 
Meet Malena Rodriguez, a therapist transformed to spiritual counselor and intuitive healer, and the amazing Carr family in Miami Florida. Alex and Ana-Mari Carr lead Dean's Dream Foundation, inspired by their 2 year-old son Dean who tragically died of a deadly brain tumor. The Carr's story of loss yet acknowledgement of the greater dimensions of lo…
 
Amanda Hope Rainbow Angels, a finalist for the 2022 Greater Phoenix Chamber’s Impact Awards, is hosting its 10th Annual "Night of Hope" Gala on September 24, 2022. Lorraine Tallman CEO joins us to share the story of her daughter, the inspiration for the foundation. During her three-year fight with leukemia and nine-month battle with a brain tumor, …
 
Author and childhood cancer survivor Carolyn Breinich joins us to raise awareness for childhood cancer and share her memoir, Faith, Hope and Cancer: The Journey of a Childhood Cancer Survivor. Carolyn shares from first-hand experience the many untold realities of surviving childhood cancer after having battled ALL, and the importance of faith, hope…
 
Lily Larue Anderson was a dynamo of hope, light, and advocacy throughout her fight with childhood brain cancer. Her mother, Barbara Anderson, joins us to share her story and also to meet Heather Murison RN, a gifted intuitive healer and natural medium, where they allow us a window into a real-time transformative healing session. We have created the…
 
Today we get an inside look behind the scenes at the amazing Balloon Wonderland, taking place July 16, 2022 at Give Kids the World Village in Orlando, Florida from an exceptional balloon artist and event decorator Yanira Colon, who was chosen to work with a team of artists on the event. Along with Yanira, owner of "Perfectly Wrapped" in Ellicott MD…
 
Approaching a personal record (200) for platelet donation at Children's Hospital Colorado, Paul Miller shares his nearly two decades of experience advocating for kids with cancer and donating his own blood and platelets to the cause, and what he has witnessed in terms of childhood cancer prevalence. In a field where numbers are used to justify almo…
 
This podcast is a continuation of our March 3 show, "Living with DMG: Scientist Father Philip Tan blazes a Trail for Xavier", where Xavier's father Philip gave us and extensive window into the life of his family and how it had changed since the diagnosis of a deadly brain tumor. In part 2 we address more closely the restrictive nature of clinical t…
 
Today’s show marks the beginning of our Spring-Summer 2022 Series, “Your Angels Are Real,” every third Thursday, where I’ll be interviewing a number of gifted intuitive healers of a wide variety of experience and use of different healing modalities. Today’s show features Heather Murison, Registered Nurse and intuitive healer, in a side-by-side inte…
 
Tracy Ryan is an innovator, entrepreneur and problem-solver with a special mission, to save her daughter Sophie who was diagnosed with brain cancer before she was a year old. Tracy launched and was CEO of Cannakids, a company which pioneered the development of cannabinoid and terpenoid combinations to treat patient's cancers based on the genetic mu…
 
In our many discussions with parents of children afflicted with brain cancer, perhaps the most telling are those of scientist parents who, like all other parents, are left to their own devices to try to save their children. Philip Tan's son Xavier, who was a in his prime as a college athlete when diagnosed, is limited in his mobility and suffers ot…
 
Parent advocacy for childhood brain cancer at the state level in South Carolina with Randy Hinton begins today's show, as he shares his relationship with the South Carolina Department of Environmental and Health Control, and the SC Cancer Registry which operates under that department. Randy's advocacy supported the 2021 South Carolina DIPG Awarenes…
 
Lynette and Marc Apodaca’s son Marc Jr was diagnosed in 2007 with a diffuse intrinsic pontine glioma (DIPG). The couple quickly realized how little help there was in the form of treatment, information and support for the families facing this deadly brain tumor. They found in their journey that once parents and a community are faced with this cancer…
 
Ryan Agnew gives us a remarkable window into his beautiful home life with wife Alison, and two children, Aspen who is turning 6 years old, and her little brother not quite two. Aspen is feeling well despite unfortunate scans of progression from DIPG, and now secondary tumors, and is approaching that point when the family may very well lose their pr…
 
From Hawaii, the Island of Oahu, Michela Haywood and Krystle Ilar share their families stories of childhood brain cancer, giving us a window into their world. DIPG--the second most commonly diagnosed brain tumor in children, is an equal opportunity destroyer of hope. In the beautiful state of Hawaii, where family is everything, DIPG lurks to steal …
 
A look back and forward for the childhood cancer awareness movement, we begin with the Creating Hope Act of 2012, the Alexis Agin Identity Theft Protection Act of 2013, the Gabriella Miller Kids First Research Act of 2014, the DIPG Awareness Resolution, forward to the Give Kids A Chance Act. Mina Carroll gives her famous, drop-mike "Bean's Ball" sp…
 
As 2022 begins, we share with our listeners 2 excerpts, a sneak-listen if you will, from "The Hill We Climb," a movie Grace Wethor, DIPG survivor and actress, has produced to promote advocacy for childhood cancer, premiering on January 24. We also share with you a powerful speech by the late Jace Ward, who lost his life to DIPG in July of 2021. The…
 
Jeni Miller joins us from her home in New Lothrop Michigan to share the story of Braden “Buddy” Miller and the Foundation that is now his legacy. The Team Buddy Forever Foundation is on mission to fund awareness of pediatric brain cancers while assisting families of children diagnosed with DIPG, giving them the necessary financial support and netwo…
 
This episode features an interview with Jessica Hester, CEO of Brooke's Blossoming Hope for Childhood Cancer Foundation, a tour-de-force organization inspired by the beautiful life of Brooke Hester. The foundation's two-fold mission first empowers others, especially children, to make a difference for children with cancer by raising awareness throug…
 
For this special edition of Childhood Cancer Talk Radio, our guest is a childhood cancer survivor of a diagnosis which, statistically speaking, takes most every life afflicted. Numbers and statistics guide our perspective when we’re in uncertain territory. Those who do survive against unbelievable odds bring us all hope, traversing the gauntlet of …
 
This episode features a real-time discussion of what goes into the work of advocating for a childhood cancer license plate. Paul Miller, childhood cancer research advocate from Colorado, has successfully worked at supporting the Colorado plates for childhood cancer. Fabiola Flores, childhood cancer advocate and parent who lost her daughter to DIPG,…
 
This episode highlights H. R. 623, important funding legislation for a crucial program at NIH for childhood disease research. Ellyn Miller, CEO of Smashing Walnuts Foundation, joins us to share the history of this legislation as well as the work today and forward into this new year supporting this and other activity in the childhood cancer advocacy…
 
Paula Carter, founder of the Scott Carter Foundation in Tulsa, OK, joins us with Caitlyn Barrett, National Director of Research and Programs for CureSearch, to discuss their collaboration in supporting a new clinical trial for DIPG. The Scott Carter Foundation has been supporting childhood cancer research for three decades in honor of Scott Carter …
 
Catharine Young, Executive Director of the Shepherd Foundation (Alexandria, VA) visits with us to give history and background to the Cancer Patient Equity Act of 2021, H. R. 5377, newly introduced to the US House of Representatives. With a focus on equity for patients with rare cancers, which comprise a whopping 95% of cancer diagnoses in the Unite…
 
Dr. Burzynski’s cancer research and patient care has been inspired by the philosophy of the physician Hippocrates: ‘First, do no harm’. The Burzynski Clinic (Houston, TX) approach to treatment is ‘personalized’ in an attempt to maximize effectiveness and minimize side effects for each cancer patient. However the success of his specialized treatment…
 
On July 6, 2008, the lives of Dena and Billy Sherwood changed forever when their then 13-month-old son, Billy Jr., was diagnosed with Neuroblastoma, a very aggressive cancer of the sympathetic nervous system that most commonly occurs in infants and children under the age of five. In August of 2009, in the midst of their son’s aggressive treatment, …
 
1Voice Foundation, based in Brandon, Florida has been innovating and implementing helpful programs for children with cancer for over 2 decades. We have the unique opportunity to hear from Founder and CEO Mary Ann Massolio, who shares with us her dedication, from her own tragic loss, to serving the childhood cancer community and research community w…
 
Kristena Kitchen joins us from Maryland and Bryanna's Love Foundation to share her upcoming book launch for "Cotton Candy Clouds" on Thursday, September 9th at 7pm ET Live on Facebook. Kristena's daughter Bryanna tragically lost her life in 2018 to ETP-ALL, a rare type of childhood leukemia for which there are not yet targeted treatments. Bryanna's…
 
Twenty-three year old Tori Moreno is fortunate not to remember too much of her early diagnosis with DIPG, but she remembers enough. Treated at the controversial Burzynski Clinic in Houston, TX, Tori did well on the treatments as an infant, and she is now a long-term survivor of the deadliest pediatric brain cancer. Tori generously discusses with us…
 
Without adequate national awareness of the urgent, unmet needs of children with cancer, the failure of the medical research system to adequately address childhood cancer will continue as progress remains a high-grade uphill battle. Randy Hinton is a childhood cancer advocate from South Carolina, and father to Haley who he lost in the 2000s to DIPG,…
 
On January 4, 2021, 6 year-old Jacob Senediak of Pittsburgh, PA died due to complications from his fight with DIPG, a deadly childhood brain cancer which spares mercilessly few of its victims. His father, Mark Senediak, joins us on Childhood Cancer Talk Radio to begin a discussion about efforts his family and others connected with "Jacob's Fight," …
 
Jessica Elder, LMSW, LCSW-NY has been the Bereavement Program Manager at Children’s Brain Tumor Foundation for 11 years. Originally from Pittsburgh, PA she acquired a Master of Science degree in social work from Columbia University in 2004, and spent 5 years working as a pediatric oncology social worker in an NYC Hospital. She then earned a post gr…
 
Retired SFPD Police Captain Rick Schiff joins us to share his experience in the mid 1990s with his daughter Chrissy who was diagnosed with a rare and deadly form of brain cancer. Since losing her to the effects of her original lethal-dose conventional treatments, he has tirelessly advocated for patients seeking treatment at the Burzynksi clinic in …
 
Today we hear from two strong, resilient, beautiful women who have beat the odds for a childhood brain cancer that normally proves to be inescapable and merciless. Jessica Ressel-Doeden from St. Louis Missouri here in the USA, and Celeste Sabagh in Cordoba Argentina have not only DIPG in common as long-term survivors, but a success with treatment f…
 
Today's show features interviews with Tammi Carr and Jenny Mosier, leaders of their respective foundations, Chadtough, in Ann Arbor Michigan and Michael Mosier Defeat DIPG Foundation in Bethesda Maryland, recently merged into the ChadTough Defeat DIPG Foundation. Each foundation leader has trailblazed on her own, and in collaboration with others, r…
 
After losing his precious son Talin to brain cancer, Gerry Tye of Sydney, Australia took a leadership role in creating support and networking for the childhood cancer community, specifically for DIPG and childhood brain cancer during a critical period of growth between 2012 and present. Founder of the DIPG Research Group and administrator for DIPG …
 
Mariah Olson was diagnosed in 1980 with neuroblastoma at the age of one year, and is a living testament as a survivor to the difficulties that so many children with cancer endure as a result of toxic, out-dated treatments they receive. She also attests to the pycho-social challenges of growing up with severe medical issues which affect children wit…
 
Mina Carroll with the Storm the Heavens Fund literally coined the “We Must Do Better” phrase, for children with cancer, in confronting the terrible reality in our society today that children are for all practical purposes neglected for research funding by the system in place. Mina's beautiful daughter Philomena was afflicted with DIPG, the killer c…
 
There is a special subtype of neuroblastoma seen in very young children, with spread of disease throughout the body, but which needs a very different approach to treatment compared to older children with metastatic disease. This episode explains the features of this stage MS neuroblastoma, the early problems, and the treatment used. Link to Patreon…
 
PNOC Foundation Administrators Allyn Campbell and Rachael Cassells join us to discuss the May 1 DIPG/DMG webinar and how people can register at www.PNOCF.events, and other upcoming webinars for the special month of May. For Brain Tumor Awareness Month, we share childhood brain cancer statistics and facts, and why awareness for childhood brain cance…
 
Christina Wascher, a long-time childhood cancer advocate, is the President and founder of the All-In-to-Win Foundation based in Miami Florida since 2013. Christina has been a philanthropist and an entrepreneur in US and European project developments for Claridon International since 1982, specializing in start-up projects and bringing them to comple…
 
Loading …

Korte handleiding

Google login Twitter login Classic login